Tuesday, January 19, 2016

Just breathe

Finally some good news.

The initial ultrasound showed that blood was flowing great to both his lungs and heart, which is where they believed the concerning clot was. He also received a CT scan to look at an area a bit higher, out of range for imaging on an ultrasound. We are still waiting for those results. During the CT, they also took images for the "staging" process, to see what stage cancer he has and what chemotherapy regimen he will need.

Conley's pain has appeared minimal so the anesthesiologist came in and removed his epidural. We've had the same anesthesiologist for most of Conley's procedures and he is amazing. Today, he came in and sang a song to Conley as a way to connect with him. I immediately knew the song and realized it was from Choice's music class. Come to find out he has 5 kids that all do the same music classes at the same place. It made us all smile and have a lighthearted vibe for awhile. Those are the moments I appreciate here. So, epidural out and pain managed. Makes mama happy.

Doctors are hopeful that Conley can start regular hemodialysis tomorrow as he appears more stable and able to tolerate it well. As most of you saw in the video, he has has several periods of lucidity, saying mama and making movements, but for the most part, he is still sleepy. The sedation still appears to be affecting movements as they are choppy and involuntary. Apparently, that's common after an epidural and even more pronounced on a kiddo who cannot process the medication on his own without dialysis.

What started out being a scary and worrisome day seems to have stabalized for now.

5 comments:

  1. You've got an amazing fighter and champion there! Setting all sorts of PRs and records every day already in his precious, young life.
    Julie D.

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  2. Please take care of yourself too. You have become literally vital to your baby. Whatever is required to support and strengthen you, take it.

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  3. Just breathe. Such a strong family with amazing love flowing. Thinking of you and hoping for more good news after hemodialysis starts.

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  4. Praying foreven better news for you and your babies!

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